Question

2. The clinical nurse specialist working on the neurologic units is asked by the staff to develop a list of supportive resources for patients and their families who are affected by oncologic or degenerative neurologic disorders. The clinical nurse specialist provides both national and local services available on this list that staff may use when caring for patients and their families. (Learning Objective 5) What national support services are available for patients/families diagnosed with neurologic oncology problems? (Provide a brief description of the services provided.) a. b. What local support services and online support groups are available for patients/families diagnosed with neurologic oncology problems? What national support services are available for patients/families diagnosed with degenerative neurologic problems? (Provide a brief description of the services provided.) c. d. What local support services and online support groups are available for patients/families diagnosed with degenerative neurologic problems?

Answer 1

a)The National support services available for patients and families with neurologic oncology problems are as following

• National Cancer Institute : provides overall support to the patient and family members
• American Brain Tumour Organization : They provide information on childhood and adult brain tumour and its care and management
• Children's brain tumour foundation funds specifically for children
• American Institute of Cancer Research : They look in to the nutrition, physical activity and weight management in cancer patient
• American Cancer Association is an voluntary organization helping in research, providing printed materials and conducting educational program
• 4th Angel mentoring program provides free and confidential information to patients and family by telephone and e-mail
• Catholic charities USA support and help the poor people
• Neuro oncology branch emotional support services for brain tumor patient and re

The services are financial assistance, General living expenses ,Health insurance, Travelling and lodging, Medical supplies, camps and research

b)The local support services available  

• Counselling
• Creating awareness and educational program
• Peer buddy program
• Arranging scholarships and camps
• Support groups
• Online portal or website to share their views

c)National Institute of Neurological disorder and stroke:It is a not for profit organization .They support the patient and family for the complete Cancer care.

Alzheimer's association support the people by meeting their daily living activities, nutrition, and personal hygiene needs

d) Brain support network functions in local level to support the clients coping strategies.